Giving a Voice to the Silence offers positive angles to the issue that faces those with mental illness. Living with Schizo-Affective Disorder and being able to share my experiences with others, is the best way I know how to pay it forward. Life can be difficult, my goal is to bring a bit of hope to a place where many feel there is none.
Showing posts with label schizo-affective disorder. Show all posts
Showing posts with label schizo-affective disorder. Show all posts

Monday, March 6, 2017

The Cold Hard Ugly Truth about Mental Illness and Sensitivity


I initially had the idea of focusing on BipolarDisorder and Schizophrenia as it pertains to sensitivity, but realized a single focus leaves out a lsrger group of people who also face these challenges on a daily basis.   

Five years ago, after several failed attempts at holding a job for more than a few weeks, countless severe depressive episodes and medication adjustments it was decided that I should consider apply for disability.  It was a hard thing to accept, while I welcomed the idea the realization that I was not able to hold a job was difficult to face and yet relief at the same time.  When I received my letter that I had been approved I became depressed, suddenly I realized that everyone (doctors, the state, and the disability system) saw me as not good enough, crazy and unable to function in society.  The one thing that was to make life a little easier and take some of the stress and anxiety away from me actually caused it.  In my mind I had this idea that I was damaged and not worth anything anymore.   I cried and yet felt relief at the same time.  The confusing world of mental illness and over sensitivity at its best, maybe they did know what they were talking about after all.   It took some time, but I accepted what I knew was the right choice and in the end realized that I could still contribute to society in many ways, but had the ability to do it on my terms, in my time and if I needed to walk away and take a break I could.  So, I began writing again and found a new love of photography. 

So, how does this all relate to sensitivity, you ask.  Well, for many people being sensitive is just part of who they are.  Everyone is sensitive at some point and in some way, its human nature.  However, for those who live with a mental illness, being sensitive becomes a challenge of mere survival and the trying to find a healthy balance. 

Being overly sensitive to a situation or comment made is called a trigger, or some may refer to it as having a switch that is flicked on.  These actions or words are seen as an insult, the assumption that someone does not like you, or you are simply not good at your job or an activity you are involved in.  While you know these are not true, the brain does not offer an objective picture of the situation and the ability to feel what is real and what is not is clouded.  The challenge is to learn how to see these triggers for what they are, ideas that developed from the actions and words of others with the absence of evidence.   Be aware that when you begin to use the words; always, everybody, never, nobody, etc., it is a sign that you may not be hearing what is being said in the right context. 

To help change the thought pattern and distorted thinking, it should be looked at as a learned skill.  For instance, when an incident occurs consider writing it down. 

Form four columns with enough room to write about the occurrence in detail.

  • ·         The incident or trigger
  • ·         What you felt at the time (how it was perceived)
  • ·         How could it be seen another way (the other side of the coin)
  • ·         How can your reaction be adjusted in the future


By doing this exercise, over time it can become second nature and train your mind to face these incidents with less stress anxiety in the future.   In addition to writing these situations down, it is also important to find additional ways to relax and calm your mind such as, exercise, talking with someone, such as a trusted friend or therapist, as well as painting or writing.  

I know for myself I need to learn and relearn, sometimes on a daily basis how to combat what I encounter.  As my mind battles the challenges of Schizophrenia, I need to continually remind myself that what I am feeling may not be the truth, as I know I am overly sensitive to conflict and criticism (or what I may perceive as criticism).   It is not  uncommon for me to play a situation over and over in mind for days, creating different scenarios in my mind of what I should have done or what I can do in the future,  and at times I find myself having the conversation out loud.  Maybe that is a good thing, they say when rehearsing a speech read it out loud to see if it makes sense. 


By learning what your triggers are and how your mind processes information, you have the most powerful weapon in defeating the effects of your reaction to being overly-sensitive to what we face in the world on a daily basis.  

Monday, February 6, 2017

5 Reasons We May Fail When Trying to Stabilize Mental Illness



When I was first diagnosed I was sure I could do it on my own, most of us do.  We believe we know better than the doctors, after all we know ourselves and what we are capable of.  We don’t set out to fail, as with any illness we want to feel well and capable of living our lives fully.   Mental Illness is different, with such a stigma attached; feeling the need to hide it offers one of many reasons  to stop treatment or even start. 

#5 – Hospitals:  If you’ve spent time on a psych ward you would understand it is not a place to learn about your diagnosis in its full extent.   It is a group of individuals trying to understand how they got to be where they are and what they have to do to leave and get better.  The nurses, techs and ultimately the doctors can talk and prescribe medication, all the while hoping that when their patient is discharged they will continue treatment, though there is no guarantee.   So, yes hospitals have their place, they can start the process, but it’s a long term solution that is needed. 

#4 – Medications:   With so many medications available, it is hard to find the combination that will work.  Often times it can take months and multiple tries to find what is right for you.  Sadly, there is no one drug that will work for all mental illnesses, is it trial and error.   In some cases, side effects can lead to further illness and/or hospitalization.   This can be why treatment is often stopped, the endless frustration from not finding a treatment that will work can be overwhelming.   

#3 – Doctors:   It takes time to find a doctor you connect with and feel comfortable talking to, if not you may be less likely to listen to them.  It can take time, but it is important when you are serious about your treatment.   Psychiatrists and Psychologists alike are there to help, but it is a two way street, so understanding on both sides is vital. 

#2 – Friends and Family:  We may have heard a friend or family member say that the diagnosis is just something the doctor made up, you were just a little sad for a few days, or being told it’s not something to talk about, what will people think?   Knowing those you rely on the most are not supportive, or willing to listen and help, can set the cycle in motion again This ultimately leads to medications not being taken, doctor visits cancelled and the mind spinning looking for answers.  In the same breath, the opposite can also be true, family can promote the illness in order to keep their loved one medicated and “under control.” 

#1 – Ourselves:   It is our human nature to believe we know more than those who are telling us what to do, feel, or say.  The idea is adopted that the illness does not exist and that if it is ignored, it will go away.  Doctors can talk all they want, medications can be taken, but if we want to believe we are fine and go on with life as we see it, then that is what we will do.  It takes time for the realization to sink in that this is a life long illness and some help is needed, we are not super human, though there are times we believe we are. 

I know there are many more reasons or ideas that can be used to explain why it is so difficult to stabilize these illnesses, but if just one of these sounds familiar, then it is one step closer to finding the peace that is so desperately wanted and needed.
  

Tuesday, January 31, 2017

This is what it feels like to be lost and found in a psychotic episode



Mental illness shows itself in many ways, it can be sad, joyous, tiring, energetic, destructive and ultimately confusing.  There is one aspect though, that is often not talked about, it is the good, the bad and the ugly all rolled into one, it is psychosis.

When I started having psychotic episodes, they were exciting, wonderful and unsettling all at once.  You’re probably wondering how this is possible, well it is and each involved emotion plays an important part.

I do not always know I am heading into a psychosis, often someone will see it long before I do.  What I am aware of, however, is what is going on inside my brain, a mystical place full of wonder and promise, hopes and dreams, confusion and fear, all put together in a room,  let out in pairs and given the ability to experience life in the “real world.”

For me, this is how it begins.   Hopes and dreams appear first, being a writer and photographer I am suddenly struck with the most amazing ideas and decide that all of them are going to work, so I begin implementing each one all at the same time.  A new book idea is started, Writer’s groups are joined, and a photography site is set up as I wait impatiently for hundreds of adoring fans to praise my work – after all it is fantastic, right? 

Wonder and promise are not far behind. I go for walks and am amazed by the images I see, the boats on the water, the birds flying and not falling, surfers and paddle boarders riding the waves.  I think of what it must be like to be on a fishing boat, to walk on an island and take those breathtaking pictures that people are waiting to see. The whole world is in front of me, the promise of what is possible and with every part of my being I know I can make it happen.  I am restless and wandering is my only desire. 

Lurking in the back of that room are confusion and fear, they ease their way out, often unnoticed, and begin the not so nice side of this otherwise joyous experience.  Suddenly, as if out of nowhere, there is a flash of something out of the corner of my eye.  A person, an animal, a car passing by, I can’t really be sure; all I know is it doesn’t feel right.  When the two little trouble makers feel the hallucinations are not enough they add sound bites as I hear my name called when no one is around.  These two little imps are clever, for fun they throw in uncontrolled thoughts, and I begin to wonder if people are mad at me, why are they not talking to me, did I do something to upset them, am I not good enough?  These are often combined with the idea something is about to go terribly wrong.  Ah, they are devilish, cunning little things. 

See all this goes on at once, a tornado swirling around my brain.  There is the part of me that wants it to end, the power of confusion and fear are too much, but the idea of endless opportunities and ability could stick around, but I know it won’t.  They will go back into their room and wait for another time to come out, and with them take the brilliant sunshine and promise they brought me.  I know it’s not reality, I figured that out a long time ago, but for a period of time I am on top of the world, I was invincible.  Sadly, when it all ends I feel I am nothing, my photos will seem dull and lifeless and my brilliant writings are junk.   

I know people are scared at the mere idea of this, but to me it’s normal.  My mind, in all its chaos is a place I can hide, and sometimes it decides to come out and play; we understand each other – sort of.

No matter how you look at it, my brain has a mind of its own and what it is capable of is nothing short of amazing.