Giving a Voice to the Silence offers positive angles to the issue that faces those with mental illness. Living with Schizo-Affective Disorder and being able to share my experiences with others, is the best way I know how to pay it forward. Life can be difficult, my goal is to bring a bit of hope to a place where many feel there is none.
Showing posts with label mask. Show all posts
Showing posts with label mask. Show all posts

Tuesday, May 2, 2017

I am Mentally Ill and I am angry

In the last month I feel as if I have broken a full house of mirrors, this amount of bad luck could only come from an act like that, or a full moon.  It began with the realization that the puppy that was such a part of life for the last four months would need to be rehomed.  It broke my heart, but knew it was best for her and me.  I then received news my mom’s cancer was no longer in remission and had begun to spread throughout her body.   The next day I had a doctor appointment, leading to have 2 separate ultrasounds done on my abdomen and pelvis.  After that I received news my daughter would be going for surgery to have cysts removed from her ovaries.   Just as I was beginning to breathe and contemplate the logistics of a trip back to the US, two more bombs were dropped on me as I received news my grandmother had passed away and a dear friend was in the final stages of cancer and would be going to hospice.

I found myself going through the motions of the day, I was going to work but wasn't really there.  I was finally talked into taking a couple days off to relax and focus on what was happening at the moment, I was clearly overwhelmed.  

I went for a walk on my first day off, and though it was cloudy, windy and chilly I climbed up and sat on one of the highest rocks overlooking the water.  It was there everything in my mind came pouring out, I didn't realize I had so much pent up anger and confusion going on inside of me.  It's no wonder I was stress and depression had taken over.  

After reading over what I had written I decided to share my writings, to give an inside look of what my Schizophrenic  ravaged brain tells itself on a nearly daily basis and for others to know they are not alone, whether they live with this illness or love someone who does.

I am angry:

Ø  I am angry at myself for being sick, or more closely mad at my brain for not being right and causing so much pain and disruption in life.  I want nothing more to have a good day, no anxiety, no sadness (often for no reason), and happiness without worrying if it will turn to mania.  I want to see the world without shadows and the sounds of psychosis.

Ø  I am angry at myself for loving a puppy, yet relieved to see her re-homed so I can relax again.  I am angry for the guilt I feel, so all I can do is cry.


Ø  I am angry that I cry nearly every day, sometimes because I have to force myself to go to work, to struggle through another 3 or 4 hours.  Something others would never think twice about is a struggle for me.  After 5 days I feel like I’ve been through a war and I’m overwhelmed and just want to hide and recover from what I saw as major battle.  Yet, I do it and I feel guilty because there are people who would give anything to have a job.   I continue on and if I am honest with myself, it is destroying me slowly.  

Ø  I am angry because I hear the talk at work about the things my co-workers put on Facebook, but I have never been asked to “be friends.” Then I realized, if they did friend me then they would know who I am.  That is something I do not want them to know.

Ø  I am angry that I need to take my medication, and do it merely out of habit, often wondering if it works anymore.  I’ve been taking it for so long, I’m not sure if I would know the difference really.  Even though I take it, I still get severely depressed, manic, have psychosis – so why take the meds – they obviously aren’t working.  Or maybe they are and even though it’s not stopping the symptoms, it could be worse.   Can’t imagine it really, it’s already hell.


Ø  I am angry and hate that I can’t share what on my mind all the time, I fear it – merely speaking the words of it all.  There are days when I don’t want to be positive, I want to sit in a corner and cry until it passes.  I want tell all the bad things in my head – that are nowhere near positive and as negative as you can get sometimes.  But I don’t, I tell myself I can merely think different and it will go away. 

Ø  I am angry that I lose my way so easily and my dreams are slipping away.   I’ve always had the idea of what life would be, I would write, share with my talents with the world.  Promote mental health, write stories and books.  Take pictures and use them to share the beauty of nature.  I would travel and experience the world as it’s meant to be, open and free.  While these ideas are still part of my life, I find it hard to achieve them when much of my time is spent merely surviving.


Ø  I am angry that the world is going on around me and I’m not really part of it, I go through the motions of living – though I don’t realize it at the time.   I wonder how much I am losing.

Ø  I am angry because I look at the sea and sometimes see only water; there are days when even the beauty is lost to me.   People come here for the breath taking views and beaches, but I see it and walk away. 


Ø  But most of all,  I am proud of myself, in at least in this instance, I didn't hide my anger and fear.  I let it out so that maybe someone else will do the same.   It’s not an easy ride for any of us, but together and by sharing our stories we can make it through. 




Thursday, January 26, 2017

A Lesson I Keep Having to Learn and Relearn



In a perfect world we act, sometimes wrong, and when we do we learn not to do that action again.  We move on with life not really thinking about it again, chalking it up to one of life’s learning moments.

There are times though when, for me, that doesn’t always work.  There is that intellectual part of my brain that tells me, “You shouldn’t do that, you know what is going to happen and it’s time to step back and think first.”  Then there is a other side of the brain, the one that thinks it knows better and can control  everything, that  tells me, ”Don’t worry, we got this.”

Seems complicated, doesn’t it, actually it’s quite simple and it is in that simplicity that I lose myself and my logical thinking.  With my mental health challenges I know that I need to take care of myself in every way possible, the right amount of sleep, eat right, exercise, take my medication, but most of all I need to listen to my body and what my mind is telling me.  This lesson is one that was brought to the forefront recently and set me back a bit.

Working a part time job four or five days a week is OK, the hours are good and I have plenty of down time and freedom to focus on what I need to do.  However, a couple weeks ago they became shorthanded at work and asked me to come in on my two days off.  Of course I jumped at the chance, two extra days of pay, how could I turn that down.  My mind right away went to how much I could make with the additional days, what we would be able to do with the extra money – that was the focus, the extra money.  I wasn’t thinking about the affect it was going to have on me both mentally and eventually physically as well.  My normal five days suddenly turned into 12 days, it wasn’t until day 8 that it hit me and I realized what I mistake I made!   I had gone against my better judgement

Eight days in I was physically exhausted, I still believed I could do it, finish the next four with no problem, I had blocked the tiredness out of my head – dissociated you could say and kept moving.   When I finished my assigned days, I had two days off and collapsed.  I enjoyed the days off and knew that after that I would be on again for five more days. 

That’s when it hit me, I woke up that morning for work and a weight was on my chest.  The world was coming at me from every direction, conversations I’d had recently had suddenly became scenarios in my head where I was wrong and would be chastised for, and no good to anyone.  I was in the midst of a major anxiety attack.   For the first time in many months I took my anxiety medicine and went to work, wanting nothing more than to just be alone and let this pass, and jump start my brain again.

As you can imagine this is not the first time I have done this, felt I could take on the world and have no repercussions, and sadly it probably won’t be the last.  Each time, however, I can only hope that I get a little stronger, a little smarter and maybe a little wiser and know that I need to listen to not only my body, but my mind.  In my case, my mind is what is most important, if that happens to short circuit, the whole wall will tumble down and it will often take days to try and build it back up to try again.

Oddly enough, yes, there is a positive side to this.  I am learning, slowly and with encouragement that I need to take better care of myself.  Look at the bigger picture, i.e. myself, not what a few extra days of work will do for the bank account, think of what it will do to me.  It’s not selfish, its self care and knowing what it will take to stay well and available for friends, family and life in general. 

Tuesday, January 24, 2012

What does Mental Illness look like to you?

sport
Image by Ilja via Flickr
Twisting and turning with nowhere to go, running from fear that no one can hear.  Hidden well in the depths of our souls searching for answers that only we can know.  We live in our minds, a place of confusion, hoping for understanding, though we dare not speak its name.  It controls our days and keeps us awake at night.  It is responsible for dark circles and hunger as it eats away at our souls. 

To the outside world, we pretend we are strong, that we are alive and ready for adventure, when in reality for us, it is always Halloween – we wear the mask of confusion and let others interpret it as they wish. Until then, we wear the mask, stumble through our days and look for the light that only we can see, the light that will guide us out of the confusion and into a life, we desire to live, full of rainbows and blue skies and the clear direction we so desperately need.    
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Monday, January 16, 2012

Are you living behind your own mask?

English: False color Skull X- ray
Image via Wikipedia

Masks:

I’m frightened.  I’m unsure, because of what you might think of me, because of what some of you might say about me.  What you think and say, the way you act influences me.  I act as if they don’t, but they do.  Maybe you are frightened too.  Maybe the ones who will mock me the most signify the most frightened, I’m unsure.

You go by me day after day, you have activities near me, you even sit by me (though not too near, as if afraid of being misunderstood), but you don’t know me.  You form your opinions without real information.  You take the mask and try to declare the person, no, less than that, if you even understood the mask, you might glimpse the person.  How much time would it take?  How much effort?  I’m tired of hiding and I disrespect myself for sitting quietly, watching this happen to myself and to others.

We cross-space, glimpse a mask, or an opinion, and hurry along our way.  I am guilty, as are you.
What if, suddenly, we see one another for who we are?  The mask drops for an instant, followed by an embarrassed silence, a mumbled apology for being human.  Quickly we alter the subject or hurry away, frightened of what might befall us and perhaps frightened that it never will.  How many are there?  Am I one or many?  What will it take to change?  Maybe it will take only one.

By:  R.H. (1999)

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